All switched to day feeding

We been working on Gerald's  feeding schedule for the past 3 weeks now. I am proud to say that we are successfully switched him from a night drip to day feeding now.  He needs 1200cc calories per day of pediasure,but we add 500 cc of water to make up the difference to upto 1700cc per day. He gets so dry during the summer if he doesn't get enough fluids. Anyways, we have no throwing -up episode at all on his day feedings and no problem at all. He is now in the normal feeding schedule like the rest of us. It nice to switched because we do not have to wake up early in the morning to turn-off the beeping feeding pump or to clean up the floor because of the feeding bag broke, none of that now. His last feeding is at 8pm and that's it! This way we can completely potty train him during the night.

We still have working on the oral feeding though. We have come to the point that he can taste every food that we ate now. I just need to teach him how to chew and swallow solid food. At this time a feeding therapist comes in handy if we have one. I hope the services that he is on provide an hour feeding session per week, but they don't! I even offered to the his case manager that I would give up two of his services in replace for a feeding therapist because that is what he really need at this time. Still, they won't do that! What a big frustration!

Feeding Pump: It works

We tried the Kangaroo Joey enteral Feeding pump yesterday and it works. Not only that it was very easy for Gerald to carry. Although  he doesn't want to carry the back pack, I still made him carry it so he'll get use to it. I am glad that we got that back pack, it so much easier now to go places and not worrying how to feed him if we don't have the pump. We have total of four feeding pumps in the house now. One was rental though, I already called the company that I want to return it at the end of this month :).

Here he was carrying his back pack and then later he was taking it off

now he's crying... I explained to him that if he won't want carry this back pack, he can push the pole whenever he want go. I think he understand the pole is a lot harder to get around the house:)

the rented one...

GJ owned this too. I got this from ebay last June 09

This is not portable that battery pack is attached to the feeding pump, so we never take this anywhere ;(

Gj owned these too. they are both portable...the gray one died on us last June (I got it from ebay too) and he used it for couple year.

The blue pump is newer pump but I got it used and it works! :)I love it because it is very small and light wt. easy for GJ to carry.

New Gadget of my little man : kangaroo Joey Feeding Pump

 The smallest and portable feeding pump ever!

Got this used feeding pump through ebay link last night. I started bidding on it three days ago and the bidding was ended last night. When Gerald got of the hospital five days ago (g-tube placement), the Option 1 link medical supply delivered Gerald's g-tube supplies including the kangaroo Enteral feeding pump link. Now, we have our own Kangaroo control feeding pump but it's not a portable one. I bought through ebay three months ago since his first kangaroo pet feeding pump (I bought it used too on ebay couple years ago) died on us in June 2009. The supplier called and asked me if I need a pump. I told them yes since I lose the portable pump that I was bidding on ebay that day. Therefore, they sent us this feeding pump called Joey pump. It was a smallest pump that I ever seen. I loved it. Just like love at first sight with that pump =)). But I was afraid that the insurance company will not pay for it later, so I went online again on ebay to be exact and started bidding again of the same kind of pump. I was hoping to find a cheaper portable feeding pump with feeding bags, but this was the cheapest that I can find. For $300 worth I think this was a good deal since the brand new of this kind of pump is worth more than $1000. Plus it includes the back pack which costs a lot too if you buy it separately. Anyway, I am going to test it tonight and see if really works. The lady that sold me this said that she only used it for couple years.

I hope this one works. I just don't want to be in the position again that the insurance will not pay for the pump and we ended up paying for the rent for $ 170 per month. I can't afford it. Not to mention the cost of the feeding bag itself. Actually, what I am really after for is the feeding bags. It seems I have no luck with good feeding bags, it keeps failing on us most especially during the night when we are half asleep and trying to get it to work.

Anyway, we picked up this pump tonight, since it was sold locally :) free shipping (of $26.00) only the cost of gas worth $ 4.80 round trip. The only thing that I noticed is that wet spot in the middle of the screen, but its okay I'll just dry it under the sun ;). I am just happy to get a pump for GJ. We can now go places without worrying how to feed Gerald and not rushing home or delaying his feds for few hours. Since this pump is so compact I can even put it in my purse when I'm in a hurry..lol.

The rented one, I already called the supplier that I am going to send it back and I just need feeding bags. It save GJ's  insurance (I hope)company every month.