CHD: Walk for Awareness

This coming Saturday we are  going to join the American Heart Association for the annual heart walk. This will be our first heart walk since Gerald was born, because I didn't know about this and probably we are busy in school. Anyway, to all my friends who live in Phoenix, Arizona please join us to this event. Our group coordinator Kym created a MENDED LITTLE HEART TEAM. Here is the link please join us!. Thank you!

CHD Awareness Month

This is my personal logo made for my son who is a CHD baby.

My friend JACY specially made this for me, so I would like to extend my heartfelt gratitude to her.

Many people never heard about the Congenital Heart Defect or CHD unless they have experience it or have relatives that affect by it. I never heard CHD before until my first born son diagnosed with CHD in the utero. I was nineteen weeks pregnant, and it was my very first ultrasound. My husband and I were very excited to know the gender of the baby when the lady that performed my ultrasound asked me to move all around and some different angle and position so that she can get a good look of my baby's heart. I knew from that point that there was something wrong. To make my story short after every month of going to the specialist and cardiologist they finally gave us what to expect for our unborn child. He was diagnose with a rare heart defect called HYPOPLASTIC LEFT HEART SYNDROME.

He was born in June 2006 and we named him Gerald Jay. 

He underwent his very first major open heart surgery at 7 days old and did very well.

He had his second stage of surgery at 4 months old, and again with God's healing power he did real well.

He celebrated his very first Halloween, first Thanksgiving at St. Joe's Hospital

He had his very first birthday party at home surrounded with family and friends. And he knew that day that it was for him and all about him.

After his 1 year birthday, he had to underwent surgery again for aortic reconstruction.

Again with God's grace and miracle he did well.

He is one happy boy and enjoy playing, trashing, and love music.

He had his last open heart surgery (FONTAN Procedure) a year ago and he is now doing great!

3 1/2 year old Gerald Jay

Here I am! A HLHS Baby and growing well with our God's grace.

HELP US SPREAD That CHD is #1 BIRTH DEFECT IN AMERICA!

Thank a Lot!

Sincerely,

Nelda