Pizza for Everyone!

I bought Gerald Jay this pizza kit. The topping and the cheese has veralco on the back, so that when you put on the top of the pizza crust it stick together. This is one way to exercise Gerald's left hand remember when he had his surgery at 1 year old, he had a stroke. The left side of his body was affected. Until now he has not gain all those back yet, he need to practice his left side some more. The Occupational Therapist suggested to get a toy that he can cut and pull using both hands. This toy is one of the things that I found at the store. He will get tired of it after few days, but I hope he'll uses his left hand when playing with it.

Just opened the box of pizza :) Pizza anyone???

What kind of toppings do you like? He looked serious..lol

He was using both hands...good hand coordination:)

more pizza kayo diyan...

Okay...last call..lol

He played with it for half hour , that was the longest time he play with a new toy.

I hope he'll try to eat a real pizza someday. Just a reminder he is going to have the G-tube placement on the 8th of October around 12nn.

Thank you guys for viewing my blog. Have a great day!

Heart Kids Pics courtesy by Ingrid Codina

        Couple months ago, we were invited by the  Mended Little Hearts group of Phoenix for a photo shoot by a professional photographer named Ingrid Codina. Here are Gerald’s photos that she took plus the group picture of our heart kids. I would say that Ingrid’s job was awesome! If you would like to see her amazing  job, and you feel like posing do not hesitate to contact her at www.codinaphotography.com. In her blog you will see some of her breathtaking photos.

Gerald Jay's in his red t-shirt.

Courtesy by Ingrid Codina

 

I love this picture most specially the black and white photo. It matches to GJ's skin complexion.

 

The group of our heart kids. They look fantastic!

The black and white version.

Special thanks to Ingrid Codina for a wonderful pictures of my son and kids. And thank you so very much for your free time and effort.
Also, special thanks to Kym that organized this event for our group.

I apologized that it took me forever to post this pictures... I was just kinda busy and lately I just have a little time to update my blog. Thanks ~ Nelda

Meeting with the new teacher!

 We met Gerald jay's new teacher yesterday. I was excited to hear what she says about Gerald in her class. She said that Gerald is a good student, he follows directions (not to me though he usually ignores me) he played with other kids, he mimic what everyone says, and he is smart. Thanks for the nice compliment about my son, teacher :). Anyway, my unanswered questions are answered now. Since Gerald jay starts talking the school bus, I never have any communication with the substitute teacher until the new teacher sent a note when GJ was falling asleep in her class ( that was the only day that he was sleepy. He was late to go to bed the night before, and I expected it :) ) But I asked the teacher yesterday if I can communicate with her through writing everyday and "YES" she I agreed with me. I think it is a good thing to communicate with the teacher and all the therapist at school, so that I will know how GJ progressing.

Anyway, he likes going to school now. GJ has no mommy anxiety separation no more.

Yesterday's photo of my kids and I.

Anyway, here the photo that my husband capture at school with my little princess. She is now almost six months old.

This was taken at home after his afternoon nap. I bought him that leap frog keyboard and that connects to the TV as his monitor. He was excited pupping the colored balloon on the screen.

G-Tube Placement Date

On October 8th, 2009 Gerald is going to have G-tube placement(feeding tube that goes directly into his stomach). It will be done at St. Joe's. We don't have the exact time yet, but I will be receiving an instructions letter in couple days. I hope we will have a successful surgery and no surprises. We waited too long already to do this, and Gerald is the best candidate for G-tube now. Too bad I was hoping that he'll be eating by now. I guess I failed on that part. I just don't know anything else to do to get him to eat orally :(. Anyway, I heard a lot of good things about G-tube. Some that had experience with it says it was easy than the nose tube... so I can't wait for it. Wish us luck and most important wish GJ the best of luck! Thanks.

Echo cardiogram

Gerald had an ECHO yesterday and he did very well at this time. I remembered all those past ECHO test was not very successful, because he used to screamed and don't wanna be touch ( i can't blame him he's gone through a lot). But yesterday, he fuss a little and fell asleep while the guy was taking picture of his heart. So, I think he got a good view of the blood flow in his heart. We won't have the result until the end of October for his cardiologist follow-up appointment (still on 2 month window after the fontan).

No signs of MRSA infection!

This is Gerald tasting some alfredo sauce. I hope he will eat soon!

Gerald Jay had an appointment today with the surgeon's nurse practitioner. We were having some issues about the MRSA on his chest, but today it's finally stated that he's clear. He has no signs of infection on his chest. It was just a scab that healing nicely. We have a letter to prove it! :)

GJ couldn't go to school today

My kids in the stroller going to K-mart

It was a procedure at school that a sick student can not go to school to protect other students and everybody. Therefore, GJ cannot go to school unless he have a doctor's note saying that he is treated and not contagious at all. I got that note today from his pediatrician, so tomorrow he can go back to school. He only missed one day, which he does not care at all. Also, he have an pediatrician appointment tomorrow to follow about his wound after the ten days treatment. I think they are going to drained the bulging part on his chest. If this happen, I would like him to stay home rather than contaminating others at school. We don't want to risk anybody , even though I cover his wound. Also, I don't think the nurse will allow him to be at school if the wound is opened. I am truly hoping that this is the last time this infection to come back. Gerald has been on antibiotics on and off for six months, and it is not just mild antibiotic most of them are heavy antibiotics, so I am a little worried about him taking those powerful antibiotics.

Anyway, to update about my daughter, she is now five months and a week. She is heart healthy and trying to sit up. In fact, I sat her up in the playpen, and she manage to hold her balance sat upright for 30 seconds. Hurry for KC!

MRSA again???

At the pediatrician clinic.
We brought GJ to the clinic 10 days ago to check his chest where the MRSA reoccured three times within six months.

Might have the fourth one again!?

MRSA is very persistent bug. It keeps coming back! We were pretty sure that it's MRSA again. He is on the antibiotic again for ten days and hopefully this time is the last time for the super bug to reoccur.

First time riding the School Bus

He was excited just to be outside the house.

Playing!

Taking a pose from uncontrollable excitement.

Watching the kids on the side street that were waiting for the school bus.

More running... he was chasing cars and dogs too!

Pointing far away.

I thought he was getting tired...

I guess he was not...hands up in the air. Where is the school bus mom?

Yey! It's finally here!

The school bus: Cartright District No. 83 Bus # 63

I am very proud of my son that he can easily adapt the new changes in his daily schedule. Today, he started riding the school bus. As his first experience to be in a different vihecle I would say that he did a pretty good job. Were we out of the house at exactly 7:20am and the bus schedule to picked him up at around 7:23am. We were not sure if the bus will stop on the opposite side of our house, but we still waited there. However, the bus stopped right in front of our house. Luckily, we weren't far away from where we waited. Anyway, he saw the bus driver and the bus assistant and he started crying. I was gonna suggest if I can ride too, but I want him to be more independent sometimes. We saw where he was going to sit, so we were kinda relaxed afterward. Anyway the bus driver assured that he is going to be okay. I believed it because when they dropped him off he was excited to see me waiting for him. I am very proud of you my beloved son...I love you baby!