HopeWalk 2012

It was a beautiful morning to support HopeWalk 2012.

It was a fulfilling and very rewarding experience plus we had fun!

I'd like to thank Bridget and her team for all they do for us... thanks a lot!

 I invited my friend Rose to join us to the walk. Since I have three kids I can't see my self walking with them without anyone with me. For one thing my boy takes off easily ( my only problem). If he behave like my little girl I think I can handle three of them. But thank God Rose rescued me.

 My kids and I before the walk starts!

 They had fun playing in the bouncer

 ...and Kathlyn curiousity ended with few photos with all the mascot at the event.

 The walk started! Yes, It felt so good!

 Just love this photo

 ...got hope?

 my little girl sleeps the entire walk.

and at the finish line there were few Rattlers Players the waited for us as well as Ms. Az 2011.

My boy with Jennifer ( Ms. Az) 

Isn't she beautiful? Beautiful inside and out! Thanks to her for supporting HopeKids every step of the way. God Bless her always!

Dentist Appointments

Dentist Appointments

My three kids had their first dentist appointment early this morning. I didn't realized how much paper work that I have to filled for three patient. Men, that was not fun paper work. I wouldn't recommend to have three kids seen at the same time. Although it was a great visit, but it was a little overwhelming.
Anyway, Gerald did a great job opening him mouth for the dentist to check his teeth. He doesn't have cavities but he needs a cleaning, not urgent.
Kathlyn on the other hand had cavities! Yes major failing on my part. I normally ask her to brush her teeth and when she says "yes" I don't really check if she did brushed her teeth. Now, she on schedule to have cleaning in couple months.
Madisen was great. She only have 8 teeth and she let me brush her teeth most of the time.

Saying more words

Yes! He is talking!

Gerald Jay have PT every Thursday afternoon. So, I took him to the therapy today since Ralph was taking a nap after  working building Gerald's loft bed. Before the PT session was over, another lady called and told me that my therapist was requesting my presence in her room ( with Gerald). So much to my surprised I murmured to my self " what did Gerald do with her now?" while walking towards the room. So, as I entered I asked Ms. Nancy what did he do? She said "no, I was just gonna show you that Gerald has been talking more lately and he knows every thing that I show to him". I told her that I noticed that too. Well, had puzzels with her and Gerald named them all. Normal if he doesn't know the stuff he would cry for frustration. Not anymore! He tried hard to talk so that everyone can understand him. I am so proud of him!

Cardiology visit

Gerald has been doing so well and his visit to the cardiologist has been moved to 6 month window. He had his annual ECHO last week also. Today, Gerald Jay visited Dr. Nowleen at the cardiac clinic at CRS. We like his cardiology very much and his whole team (APCC) that Ralph was excited to see him and what he is going to say about GJ.  Gj's heart is working well or I should say doing very well :-). I love to hear those words from our cardiologist. Also, we are going to wean off GJ from one of his meds and increase the other one. All in all, Kuya is doing awesome health wise. Thanks God!

" Hard!"

When my son came back from school, my girls were all napping. Gerald Jay was alone playing in the living room. So, I sat on the floor close to the couch and I told him if he want to sit on my lap for mommy time. So he did sat on my lap. Every day I always ask him with this " how was your day at school?" I normally didn't get any answer. I don' know if he really understand me but I was hoping that one day he will give me his answer. well, today was the day that I was waiting for. I don't if it will happen again tomorrow, but he was very precise and straight forward when he told me the his day was HARD! he said, " oday HARD!" big grin on my face and thanking God that he understand me. Praise God!

My kids having so much fun in the mud.

Kathlyn's first Day to School

Kathlyn's First Day to go to School

Kathlyn has been asking me if she can go to school like Kuya Gj. I always tell her that she will be going to school in her time. I told her when she turned 3 years old she will going to school like kuya Gj, but not at the same school with Kuya. Normally she would response by saying " ahhhhh" with her droopy shoulder kind of thing. Last night, I told her that she will start going to school tomorrow. she said happily, " really? I go to school? " I said, " yes, so go to bed now and wake early tomorrow morning". She did.  

Anyway pictures will tell what happens the rest of her day today.

 She's so ready for school!

 We celebrate her first day school with lots of chicken nuggets and fries

 Then later in the afternoon, the played bike with Madisen in the walker.

My precious children..thanks a lot God for the blessings!

Used bike

No more fight over a bike... KC normally wins. Today, I found a used bike at the garage sale for $10 (expensive) plus I bought the training weels for $10 = $ 20 for the red bike. The blue bike I paid $ 4 over a year ago sa garage sale din and still working. But $20 is worth it 'cause it eliminates my kids from screaming and fighting over a bike at 7:20 in the morning... I know neighbors hates us!

Missing tooth

At 7:00 this morning I notice Gerald Jay missing another tooth again. I didn't know where his tooth is at, if he swallow it or he pulled by himself... it was a mystery.

Barium Swallow Test

Gerald Jay had another barium swallow test today. His GI doctor requested a new barium swallow test to see where he is at on the the swallowing (disphagia - difficulty of swallowing) issues. 

Gerald aspirates when he drink the un-thickened fluid. We normally give him fluid that is honey thick consistency, and he does better on that. I think we did it for a long period of time. It was two years since his last test. Today, I was happy to know that he is slowly improving in terms of swallowing. He is now down to nectar thick which is less consistency than before. I am crossing my fingers that he will continue to improve on his feeding issues.

Also, he has been trying new foods. He actually ate peanut butter sandwich and noodle. I mean literally swollowing the bread and noodle. We have not received any feeding service since February of 2009. I was hard, because I don't know how to teach him to eat. He come a long way, and I hope he will continue to eat orally.

Screaming boy :-(

Couple weeks ago I noticed that Gerald Jay expresses his disapproval for anything with a loud short scream. I am trying to figure out why he does that. Over all he is doing well.

Sis is big 3 now

I could believe that she turned 3 now. Where those years go??? Men I feel like old now lol.

 

I got the cake from Walmart this morning. I made the princess cake topper since I forgot to order a cake for her yesterday. Just to many things going on and one of the things that I forget was to order a cake for little princess... but wait mom had a great  ideal :-) just make a cake princess topper. So , I did and it works. She was happy and had fun at her Big 3 party.

Oh... I should not forget to thank Grandma Marla for hosting the party..it was a great one!

 Her big 3 photo.

dress courtesy by Aunt Diana...thanks a bunch!

 Dad and his four children

with mom and four kids!

Happy happy 3rd birthday to my princess Kathlyn!

I love you very much, Baby!

GI Appointment

Gerald had a great GI visit today. The doctor told me that he is very pleased about Gerald's progress in terms of GI problem. He order a new barium swallow test just to check if he needed to lessen the consistency of his thickener. Also, he changed his formula from 1.0 calorie to 1.5 calorie and four cans a day instead of 6 can a day of 1.0 calorie/ml. Hurry for changing the milk because I really want to get Gerald down to 3 feedings everyday.

I took couple of great pictures of Dr. Ufberg and Gerald but I can't post it here. Ahhh... too bad because it was a great photo.

Anyway, I would like to thank his GI doctor he has been very good to my son and always address our concerns one knot ahead of us. I would recommend him to anyone!

Madisen is crawling now

My little daughter Madisen put  distance today. She is now finally crawling! Scarrry! She hit it before she turned 8 months old. Earlier this month she was just on her tummy, but she progresses a lot from being on her tummy to all fours and from all fours to sitting and crawling. I am very happy that she catch up fast. I am so very proud of my little one! I love you Baby Madi!

HopeKids- Bumble bee Ranch, Bumble Bee, Az

We had a FUN time at the Bumble Bee Ranch courtesy by HopeKids of Phoenix. It was our very first appearance at the Hopekids- Bumble Bee Ranch Event and I tell you what... my kids had a blast!

Family photo courtesy by Hopekids

playing on the inflatable slide

We found the shady spot to camp out

just checking out some animals in the farm

Just a family photo with Bridget the coordinator of HopeKids program.

Thank you very much Hopekids and Bridget!

Cardiology Appointment

Gerald had a cardiology appointment this morning. all was positive!!! His last cadio appt was six months ago and he is doing well!

Madisen is Trying to CRAWL

My youngest daughter is up on all fours today and tried to move forward and then she crushes on the floor. Well, at least she tried! She is now 6 months and 3 weeks.

IEP Meeting and Attendance letter

February 27, 2012 IEP Meeting

We had a great IEP meeting at School. I am so proud of my son Gerald Jay that he improves a lot most especially his behavior. We had a lot of positive feedback from the therapist and teacher. Also, we dis continued his physical therapy at school since he already met his goals.
The team that work with Gerald Jay at school are awesome! and we all in the same goal for him.

February 29th, 2012

I received a letter from school about Gerald Jay's attendance being late and not going to school. This one is just made me irritated. I already told them that GJ is having therapy every Monday morning and he gets to school approximate 8:10 to 8:20 am. Then, they keep sending back home if he throws up after feeding and charge him for being sick. Also, when is sick I didn't sent him since that is so contiguous, I know why it contiguous because he got it from his two sisters. I took him to the doctor and have a letter for that. Just so irritating! I asked them about the excuse letter from the doctors if I should file one and they said "no" it won't be necessary! And now I am receiving this stuff....Just so irritating

Student of the Month!

Gerald was selected as the Student of the Month in his class. The school conduct a student of the month Luncheon with the principal. Well, I feel awful that I missed it. I was too wrapped-up with my own school stuff, and I forgot my son's important event at school. If he understand and can talk he would probably asking me why? I am so sorry, baby. I will do better next time!

Gerald Jay's First Student of The Month Photo
with
Ms. A. Stone
( special ED teacher)
 and
Dr. R. Saunders
(School principal)

Special thanks to his teacher and teachers aids for being there to attend with him and to Dr. Saunders...Thank You All Very Much!!!

KC's new hair cut

         Today, my daughter and I had a hair cut courtesy by Jem V. Kathlyn did a great job sitting while Jem was cutting her hair, although she was quite a little wiggly costumer. It was just a slight trim,because I want to see her hair grow longer when she turn 5 years old. Her hair color is completely different than mine. My hair is black and her's is light brown :-).

Thanks ate Jem for cutting my hair...I love it!

This is my new hair style ...with bangs :-)

Thank you very much Jem for the free home service and hair cut!

Sick Day

          At 4 o'clock in the morning I heard noises in the living room. It was my husband and Gerald doing something early in the morning. When my husband came back in the bedroom, I asked him why they woke up too early. He said that Gerald has been using the toilet every five minutes since 3 o'clock in the morning. Wow! I didn't ever hear any commotion for one hour? I must have been in my deep sleep.
          Anyway, we decided to keep GJ at home today and did not send him to school. At 7:30a he probably used the toilet more than twenty times. Imagine how uncomfortable that is to have diarrhea. So, most of the day I only feed him pedialyte to keep his electrolytes balance and hoping that he will feel better soon. I don't know why my kids get always sick towards the weekends every time and doctors offices are closed on weekends! I can't take him to the pediatrician not until Monday, and I don't know how long do I need to keep him on pedialyte. I only fed GJ a can of pediasure before bed, because I gave him aspirin. Other than that, he was completely pedialyte fed throughout the day. Hmmmm, now who am I gonna ask for in this kind of situation...think think think!

this is cute! Madisen was admiring her brother's whiny face..he doesn't feel good, sweetie!