at the park

at the park

swinging

 GJ was running away from me :)

I was not successful of taking his picture like Kathlyn

My little girl

the poses!

me and kathlyn

Changing the Feeding pattern

Spring Break is a perfect time for me to change Gerald Jay's feeding pattern/ schedule. We normal feed him more (G-tube) during the night. Since, he have the issue of puking everyday before he got his G-tube, and we continue feeding him until last week. However, his feeding therapist (seen him once a month) advised us to cut down the feeding during the night because it is not normal to eat during the night. I suddenly realized that we kinda forgot that normal people eat during the day and sleep during the night. While in GJ's case he eat and sleep at the same time at night since we fed him through the G-tube ( which serves as his normal routine).           

Anyway, I tried to cut down GJ's feeding since Monday and slowly transitioning into day feeding. He has been drinking milk through a straw ( a big progress in his feeding part) for quite a while now, but there were days that he will not take any fluids then we have to hook him up again into the feeding pump.

Also, after we have the g-tube placed his puking episode has been down dramatically. When he was using the ng-tube ( that also contribute esophageal irritation) the puking is almost every feeding or maybe 10 times a day. And that is why we divided to feed him more during the night.  That is why the feeding therapist kinda back off of him since he was not getting any progress. But now, we are glad that we got the g-tube because it help GJ a lot. His puking episode has been down to 1 time a week or sometimes none.

Gerald Jay with the NG-tube.

GJ with the G-tube placed on his tummy!

GJ's feeding stuff

He is only allowed 1400 fluids intake per day

We normally feed him 700 - 850ml during the night and 550ml during the day through a straw and feeding pump.

This is his feeding bottle with a straw. I tried to put it in  the zippy cup for a change but we would not touch it or drink the milk. So , I switch back to feeding bottle and straw.

New Feeding Pattern:

we are now down to

400ml during the night for 2 days

1000ml during the day for 2 days

Then 

300ml during the night for 2 days

1100ml during the day for 2 days

 and then 

200ml during the night for 2 days

1200ml during the day for 2 days

then

100ml during the night for 1 more day

1300ml during the day for 1 more day

finally

1400 ml during the day

I will need to get a prescription for his feeding from his pediatrician so that while he is at school the nurse will be able to feed him by mouth or g-tube.

I hope this new feeding schedule will work for him and no puking episode. Wish us luck!